Thursday, November 17, 2011

A year ago today…

A year ago today my baby girl, at just 21 months old, was diagnosed with Juvenile Rheumatoid Arthritis…something we knew nothing about.

Now, 12 months later, our lives are a little different, we are by no means JA experts, but there’s definitely so much more we know now that we didn’t know then.

In the last 12 months Bevin has had:
·         44 injections of Methotrexate (that’s more injections than vaccines!)
·         6 lab draws (and she will have another before the month is over)
·         3 Ophthalmology appointments
·         694 doses of Naproxen

But because of the JA we:
·         Got involved with our local Arthritis Foundation and found out how wonderful and supportive they are
·         Were able to attend the 2011 JA Conference in Washington, D.C. (thanks to the Arthritis Foundation) 
Meet some awesome families who have been a great support system and some who have become great friends
·         Raised $3304 for the 2011 Arthritis Walk
·         Were asked to let Bevin be the Juvenile Honoree for the 2012 Sacramento Arthritis Walk (of course we said yes)
·         We found out just how awesome our Pediatrician really is

I would never wish any kind of disease on anyone, especially a kid, but it really does show that so much good can come out of something bad.  Do I wish she didn’t have this disease, yes, but would I want to go back in time and never have met all these wonderful people…no.

I have been overwhelmed with all the support we have received from family, friends and strangers.  People who have found our blog and followed Bevin’s journey for the last year and kept our family in their thoughts has meant so much to me. 

Thank you so much to everyone who has supported Bevin this last year and I hope you continue to do so! 


2 comments:

  1. I was in love with Bevin from the moment I met her! I adore her personality and her independence :)

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